Welcome to our non-profit organization and support group!
We’ve really only just started this organization, so mostly so far we’re in Oregon. But if you’d like to join forces with us and start a support community in your city or state we’d love to help you figure out steps in doing so! It’s worth ever second!
Here in Oregon we’re organizing and distributing information and doing presentations to increase awareness about Vulvar Vestibulitis Syndrome and it’s symptoms, treatments, and the stories of us women who survive and thrive through this disorder. We are also advocates of face to face support groups. We’d like to help you set one up in your area if you’re interested. Speaking with other women who have this condition has improved the quality of all of our lives immeasurably!
Our mission is to bring support and relief to women who suffer with chronic vaginal pain.
We will have a table set up at PSU’s Portland International Women’s Day, 2008! That’s March 9th from 2 pm to 8 pm in the Smith Center Ballroom, which is room 355 of the Smith Memorial Student Union Building. That’s in between SW Park and SW Broadway and on the corner of SW Harrison Street. We will have information and live support available! Please stop by and see us there! Please visit the Portland International Women’s Day’s website at: http://www.piwd.org/
We had a table at the Siren Nation Festival’s Community Marketplace, on November 4th, 2007, at the Kennedy School in Portland, Oregon. We had information, pamphlets, fliers, and posters about Vulvar Vestibulitis Syndrome. We did some live support and met lots of people who had never heard of VVS. That was very interesting! And productive! Even many of the people who did not approach us saw our signs and posters. They read the name of our organization and now they know that we are here! Many people slowly walked past and read our fliers too, so got a bit more detailed information. We talked to everyone who expressed interest (and some people who did not), and made some good contacts in the community. We even made a few dollars toward our incorporation fees by selling things we’d made. You can see more information about the Siren Nation Festival at http://www.sirennation.org/, this was the first Siren Nation festival. And next years should be even more wonderful!
If you would like us to present information at any event in Oregon, Washington, Hawaii, or anywhere in the world, please contact us. We are excited to share information and would love to expand our audience to new towns, cities and states.
Our group consists of a painter, a poet, a teacher, a superstar knitter, an awesome jewelry maker and a seamstress of the most amazing heat/ice pads (called, rightfully, Goddess Pads. Please contact us for more information about these if you are interested, they are for sale and worth every penny.) Among us are mothers, sisters, only children, very strong women, activists and future stars. Please contact us if you’d like to help us raise funds, volunteer at an event with us, or help us in any way. We are still getting our feet off the ground as an organization. Soon we’ll even learn how to put a paypal link on here!
This website is new and is very much under construction. The webmistress is actually a working painter and is learning this “internets stuff” as she goes along. Thank goodness for templates! And it’s still a massive terrifying gorgeous challenge. YAY!
Please check back for more information, and please contact us! We’d love to hear from you. Thanks to this site we’ve met some of our favorite people!
You can check out the webmistress’ art website at www.kathleensimpson.info.
